Our Partners & Additional Resources


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Our Partners

More Information

Resources for Genetic Testing and Genetics Information

Peer Support & Support Groups

Resources for the Jewish Community


Our Partners

Chicago Center for Jewish Genetic Disorders
The Chicago Center for Jewish Genetic Disorders is a cooperative effort of the Jewish Federation of Metropolitan Chicago and Children’s Memorial Hospital that was founded in 1999 to provide public and professional education about genetic issues affecting the Jewish community. Their critical effort is to provide public and professional education and to empower community members to seek out information and prevention strategies. With its current set of sponsors, the Center represents the blending of science with religious, cultural and historical sensitivity and awareness. The Center seeks to become the voice that translates laboratory discoveries into accessible information for the Jewish community at risk as well as for physicians and other health care providers.

Coalition for Genetic Fairness
The Coalition for Genetic Fairness is comprised of 140 civil rights, patient, health organizations, and industry groups dedicated to fighting the misuse of genetic information in employment and insurance decisions. Since 2000, the Coalition has worked to pass comprehensive federal legislation prohibiting genetic discrimination.

Facing Our Risk of Cancer Empowered
FORCE is the only national nonprofit organization devoted to individuals and families affected by hereditary breast and ovarian cancer. Through their website and national events, FORCE provides education, support, resources, and advocacy for the high-risk community.

Genetic Alliance
Genetic Alliance represents over 600 national health organizations and leverages the voices of millions of individuals and families living with genetic conditions. Genetic Alliance is dedicated to improving the quality of life for everyone living with genetic conditions.

Intercultural Cancer Council
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.

National Black Leadership Initiative on Cancer
The NBLIC, a program of the National Cancer Institute, is a groundbreaking attempt to mobilize scientists, community leaders, community-based organizations, government officials, academicians, and other stakeholders throughout the U.S. in an effort to address the disproportionate cancer burden facing African Americans. Their work focuses on outreach to the black community through public education, to increase awareness of cancer and cancer risks, improve health-related behaviors, and break down barriers to prevention, early detection, and state-of-the-art treatment.

National Society of Genetic Counselors
NSGC is the leading voice, authority, and advocate for the genetic counseling profession. With over 2300 members, the NSGC serves to promote the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy.

Susan G. Komen For the Cure
Susan G Komen’s vision is a world without breast cancer. The Susan G. Komen for the Cure promise: to save lives and end breast cancer forever by empowering people, ensuring quality care for all and energizing science to find the cures.

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More Information

National Human Genome Research Institute
The National Human Genome Research Institute led the Human Genome Project for the National Institutes of Health, which culminated in the completion of the full human genome sequence in April 2003. Now, NHGRI moves forward into the genomic era with research aimed at improving human health and fighting disease.

National Cancer Institute
The NCI, established under the National Cancer Institute Act of 1937, is the Federal Government's principal agency for cancer research and training. The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

National Institutes of Health
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research. Helping to lead the way toward important medical discoveries that improve people's health and save lives, NIH scientists investigate ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases.

American Childhood Cancer Organization
ACCO is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer and their families.

The Mesothelioma Group
A small team of healthcare professionals, patient advocates, and communication specialists who have one goal: to lead the way in supporting and encouraging mesothelioma patients and their families.

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Resources for Genetic Testing and Genetics Information

National Society of Genetic Counselors
The National Society of Genetic Counselors Vision is to be the leading voice, authority and advocate for the genetic counseling profession. They promote the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy. The Society also promotes the professional interests of genetic counselors and provides a network for professional communications. Local and national continuing education opportunities and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of belonging to the NSGC.

INFORMED Medical Decisions, Inc
INFORMED offers telephone-based genetic counseling services providing comprehensive genetic counseling by Board-Certified genetic counselors to individuals and families at risk for hereditary cancer. Many individuals and families at risk for hereditary cancer do not have local access to these genetic experts. INFORMED provides comprehensive genetic counseling, discussion of genetic testing options, coordination of genetic testing (when appropriate) with the individuals personal physician and follow-up that includes formal recommendations for cancer screening and risk reduction.

Genetic Resource Repository (by Genetic Alliance)
The new Genetic Alliance Resource Repository is a robust document repository service that aggregates the combined resources of advocates, healthcare professionals, government agencies, think tanks and other contributors.

The new Resource Repository enables you to search by keyword or to browse categories such as policy, communications, or fundraising. Features include the ability to track new content tailored to your interests, a “What’s New” box to see the latest content, and a “Frequently Downloaded Resources” button to view the most popular papers in the Repository.

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Peer Support & Support Groups

FORCE: Facing Our Risk of Cancer Empowered
FORCE is an 8,000+ member program and national nonprofit organization devoted to providing support to the high-risk community and improving the lives of individuals and families affected by hereditary breast and ovarian cancer. There are outreach and support groups in almost every state, as well as a comprehensive on-line network of discussions boards.

Bright Pink
Bright Pink is a unique organization dedicated to providing support and resources to young women at high risk for hereditary breast and ovarian cancer. With fundraisers and special events in many cities, Bright Pink brings together strong young women committed to being proactive with breast and ovarian health.

Imerman Angels
Imerman Angels is a not-for-profit organization providing one-on-one cancer support: connecting cancer fighters, survivors and caregivers. Imerman Angels partners a person fighting cancer with someone who has beaten the same type of cancer. Based on the theory that one-on-one relationships give a fighter the chance to ask personal questions and get support from someone who is uniquely familiar with their experience. The service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.

Livestrong
The Lance Armstrong Foundation is a national network that is dedicated to helping anyone affected by cancer. They provide information to learn about all different types of cancer, get one-on-one support and hear Survivor’s stories.

Susan G. Komen for the Cure Affiliate Network
Komen for the Cure is the world’s largest grassroots network of breast cancer survivors and activists fighting to save lives, empower people, ensure quality care for all and energize science to find the cures. Events like the Komen Race for the Cure brings together families, friends and strangers alike to feel empowered and unified, while raising money for breast cancer research. Affiliate groups are in 125 cities across the country.

Previvors and Survivors.Com
An On-line blog and forum for BRCA+ women.

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Resources for the Jewish Community

Chicago Center for Jewish Genetics Disorders
The Chicago Center for Jewish Genetic Disorders is a cooperative effort of the Jewish Federation of Metropolitan Chicago and Children’s Memorial Hospital that was founded in 1999 to provide public and professional education about genetic issues affecting the Jewish community. Their critical effort is to provide public and professional education and to empower community members to seek out information and prevention strategies. With its current set of sponsors, the Center represents the blending of science with religious, cultural and historical sensitivity and awareness. The Center seeks to become the voice that translates laboratory discoveries into accessible information for the Jewish community at risk as well as for physicians and other health care providers.

BRACHA
BRACHA is the only website and organization dedicated to the issue of Hereditary Breast and Ovarian Cancer in the state of Israel, where estimates show approximately 30,000-40,000 people are affected with a BRCA genetic mutation.

Sharsheret
Sharsheret is a national organization of cancer survivors dedicated to addressing the unique concerns of young Jewish women facing breast cancer.

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